In a heart-wrenching development, a mother has come forth and claimed that her 6-year-old daughter suffers from an extremely rare and rather unfortunate condition, where she stands at risk of losing her life while watching ‘Peppa Pig’, her beloved cartoon show. Six-year-old Sadie Bowyer is fighting for her life every time she watches the innocent and beloved children’s show Peppa Pig.
Sadie’s life has been a constant battle since birth when she was diagnosed with Congenital Central Hypoventilation Syndrome, a rare and life-threatening disorder that affects only one in 200,000 newborns.
As per Sadie’s mother, her daughter’s brain can forget to send signals for her heart to beat, resulting in respiratory distress and the need for a tracheostomy. Tracheostomy is when a hole is created in the neck with a tube placed in the windpipe, a process crucial for breathing.
Despite her parents’ tireless efforts to care for her, they say there are some instances where Sadie’s breathing doesn’t function automatically, and watching Peppa Pig is one of them.
According to Sadie’s mother, Star Bowyer, if her daughter concentrates really hard while watching Peppa Pig, she’ll stop breathing. Sadie’s family has set up a GoFundMe page to raise money for Diaphragmatic Pacers, a life-changing surgery that would cost £160,000.
The Facts of the Matter
The innocence of childhood is a treasured and beautiful thing, but for six-year-old Sadie Bowyer, even watching a cartoon is a life-threatening act.
Sadie suffers from an extremely rare disorder that affects only one in 200,000 newborns. Her brain can forget to send signals for her heart to beat, and watching a children’s show like Peppa Pig can trigger an instance where her breathing stops, putting her life in danger.
Sadie Bowyer, a six-year-old girl from Birmingham, has a rare disorder that has left her fighting for her life every time she watches Peppa Pig on TV. At birth, she was diagnosed with Congenital Central Hypoventilation Syndrome.
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What is Congenital Central Hypoventilation Syndrome?
For the unversed, Congenital Central Hypoventilation Syndrome (CCHS) is a rare disorder that affects the automatic control of breathing, particularly during sleep. This means that individuals with CCHS may experience shallow breathing or even stop breathing altogether. It is a lifelong condition that requires constant monitoring and medical assistance.
Sadie’s Life After CCHS
In Sadie’s case, her CCHS was so severe that she had to undergo a tracheostomy, a surgical procedure in which a hole is created in the neck to insert a breathing tube directly into the windpipe.
While this helped Sadie breathe, her condition still meant that her breathing didn’t always function automatically, and there were instances where her brain would forget to signal for her heart to beat, leaving her at risk of respiratory distress.
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CCHS Prevents 6-Year-Old from Watching Peppa Pig
This meant that Sadie could no longer watch her favorite show Peppa Pig, as with more focus, there was a likelihood of her ‘forgetting to breathe’. She starts turning blue and goes very still. Carbon monoxide retention makes her tired, and she requires immediate assistance from a ventilator.
Effects of CCHS
Sadie’s condition also impacts her social life. She can’t go to playdates or have the privacy she deserves, as she requires constant care. Sadie’s condition has affected her mentally as well. She was recently at the park, and some kids were pointing at her tracheotomy and calling her ugly.
Her parents have set up a GoFundMe page to raise money for a life-changing surgery.
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