Recently, British actor Jameela Jamil revealed about having a rare tissue disorder called Ehlers-Danlos syndrome. In a social media post, Jameela acknowledged having the rare skin disorder and further celebrating it by raising awareness.
The She-Hulk actor can be seen pulling her skin away from her mouth like it is almost elastic. She also says, “Jesus Christ, that is not an app, that is not a filter, that is just my face. Look how elastic that is”.
In the post’s caption, Jameela went on to give more details about the rare tissue disorder. “NB geneticists are also good for diagnosing EDS. I saw a rheumatologist because I have hEDS which affects my joints. Good luck finding a diagnosis. Hold strong. Love you,” the caption read. She also said that she doesn’t like to talk about being diagnosed with the disorder after being made fun of on the internet. Further, she said that the disorder and the trolling she received because of it made her suicidal.
The 36-year-old also hyperextend her hands and said, “It pertains to my joints. As you can see, nothing bends the right way, everything bends the right and the wrong way.”
The Ehlers-Danlos syndrome or EDS, is a group of 13 hereditary tissue disorders. People who suffer from EDS experience joint pains, fragile skin and dislocations.
The Facts of the Matter
While most celebrities are thought of living a life of abundance and fame, there are several celebrities who live with their demons. Be it substance addiction or health related issues, celebrities are also now being vocal about their suffering and their actions and using social media to raise awareness.
Recently, Marvel’s ‘She-Hulk: Attorney at Law’ actor Jameela Jamil took to Instagram and opened up about suffering from Ehlers-Danlos Syndrome.
Jameela Jamil Opens Up About hEDS
In the video, The Good Place actor stretched her cheeks to show the elasticity of her skin and also hyperextended her arms to show how the condition has affected her.
“Jesus Christ, that is not an app, that is not a filter, that is just my face. Look how elastic that is,” she said. “The reason it is so elastic is because I have something called EDS, that is Ehlers-Danlos syndrome. I have EDS3, hEDS3, and it’s the ‘H’ because I’m so hypermobile,” she added.
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How Being Diagnosed at Early Age Helped Jameela?
The 36-year-old actor also mentioned being diagnosed with the rare disorder when she was 9. she said that being diagnosed that early in her age helped her avoid things that would have made her unwell when she would have gotten older.
“It’s a really serious condition and it impacts every single part of your body and it even affects your mind,” she added.
In the caption of her Instagram post, Jameela said that she was made fun of on internet when she spoke about it on internet, which also made her feel suicidal for a while. “I don’t talk about this more often. The internet made fun of me over my health problems and it made me suicidal for a while,” she said.
What is Ehlers-Danlos Syndromes?
As per NHS, “Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue,” and there are 13 types of EDS, most of which are rare and not commonly diagnosed.
Jameela has been diagnosed with Hypermobile EDS or hEDS. People who are diagnosed with hEDS suffer from “joint hypermobility, loose, unstable joints that dislocate easily, joint pain and clicking joints, skin that bruises easily”.